TOGETHER WE MAKE IT HAPPEN
YOUR FUNDRAISING DRIVES EVERYTHING WE DO
Louie's HUWE, the charitable nonprofit for HUWE1, is dedicated to improving the lives of those affected by HUWE1-related genetic conditions and accelerating research into treatments. Our work is powered by our community of generous patients, parents, families, friends and supporters. Your fundraising is what makes it all possible - we are so very grateful for your support.
There are many ways you can help us - together we can make a difference to the lives of people living with HUWE1. Some of our key fundraising channels are shown below, but we are always looking for ideas so if you would like to help with something, please do get in touch.
Facebook makes it simple to raise funds - you can easily set up a birthday fundraiser or really, do one anytime the urge strikes - you set a goal and share it with your family and friends. Just select Louie's Huwe when you set it up. Local currency donations can be made in a range of countries.
The 2023 5K River Run for HUWE1 took place at Fort Pierce Florida, USA on December 2nd, 2023. Runners also joined virtually in the UK. Watch this space for details of the next event.
River Run for HUWE1
Flowers & Fundraising – “Just picked” Crayon flowers are shipped directly from growers and benefit Louie's HUWE. What can be more beautiful?
US Federal employees and retirees can support Louie's Huwe via their monthly payroll through the Combined Federal Campaign #51853.
Combined Federal Campaign
Holiday cards, stationery, gifts, calendars, items for your home….Are you ready to do some shopping? We’ve partnered with Minted to help us fundraise. Shop minted.com using promo code FUNDRAISELOUIESHUWE. You’ll save 20% and minted will give 15% back to the Louie's Huwe. It’s a win-win!