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LOUIE'S HUWE FUNDRAISERS

TOGETHER WE MAKE IT HAPPEN

YOUR FUNDRAISING DRIVES EVERYTHING WE DO

Louie's Huwe, the charitable nonprofit for HUWE1, is dedicated to improving the lives of those affected by HUWE1-related genetic conditions and accelerating research​ into treatments. Our work is powered by our community of generous patients, parents, families, friends and supporters. Your fundraising is what makes it all possible - we are so very grateful for your support. 

 

There are many ways you can help us - together we can make a difference to the lives of people living with HUWE1. Some of our key fundraising channels are shown below, but we are always looking for ideas so if you would like to help with something, please do get in touch.

OUR FUNDRAISERS

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Facebook makes it simple to raise funds - you can easily set up a birthday fundraiser or really, do one anytime the urge strikes - you set a goal and share it with your family and friends. Just select Louie's Huwe when you set it up. Local currency donations can be made in a range of countries.

Facebook

HUWE1 merchandise

Get your Louie's Huwe gear including t-shirts, sweatshirts, hoodies, caps, coffee mugs and more. 

For shipping outside of the USA, please contact us.

ALL PROFITS GO TO LOUIE'S HUWE

Merchandise Fundraiser

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US Federal employees and retirees can support Louie's Huwe via their monthly payroll through the Combined Federal Campaign #51853.

Combined Federal Campaign

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Branches & Batches is a florist and flower farm serving Howard County, Maryland and surrounding areas. They grow and arrange beautiful flowers organically and sustainably in order to make people happy and to raise money for Louie's HUWE. 

Branches & Batches

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The 2023 5K River Run for HUWE1​ took place at Fort Pierce Florida, USA on December 2nd, 2023. Runners also joined virtually in the UK. Watch this space for details of the next event.

River Run for HUWE1

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Flowers & Fundraising – “Just picked” Crayon flowers are shipped directly from growers and benefit Louie's HUWE. What can be more beautiful? 

Crayola Flowers

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Holiday cards, stationery, gifts, calendars, items for your home… Are you ready to do some shopping? We’ve partnered with Minted to help us fundraise. Shop minted.com using promo code FUNDRAISELOUIESHUWE. You’ll save 20% and minted will give 15% back to the Louie's Huwe. It’s a win-win!

Minted

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The 2nd annual benefit concert for Louie’s HUWE will be held Wednesday, September 4th 2024 from 7-9 pm at Stonecloud Brewing Company in Stillwater, Oklahoma! Our event helps raise awareness and fund medical research into HUWE1 related genetic conditions.

Annual Benefit Concert

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©2025 by HUWE1.org. Please note that HUWE1.org provides this information for the benefit of people affected by HUWE1 gene variants. HUWE1.org is not a medical provider or health care facility and can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on the personal and individual medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.

HUWE1.org supports the US charitable nonprofit organization Louie's HUWE (EIN: 86-1930096).
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