MEET OUR TEAM
TOGETHER WE MAKE IT HAPPEN
OUR TEAM IS DEDICATED TO IMPROVING LIVES OF PEOPLE WITH HUWE1
The Louie's Huwe Board is a small international team of dedicated volunteers comprising parents, medical and genetic experts as well as financial, legal and fundraising professionals. All positions are unsalaried and entirely voluntary - we are hugely grateful for everyone's time and support. We also have a network of regular volunteers who provide invaluable support that drives everything we do. Brief profiles of our key team members are shown below.
We are always looking for more ways to support the lives of people with HUWE1 - if you would like to volunteer or join our board please do get in contact.
OUR LOUIE'S HUWE TEAM
Newly appointed in 2024, Sydney is the mother of River and lives with her family in Stillwater, Oklahoma. She has a professional background in accounting and holds a Bachelor’s Degree in Accounting from Oklahoma State University. She has been an integral part of our fundraising efforts by leading charity events including the annual River Run, benefit concerts and Louie's HUWE shirt sales.
EXECUTIVE BOARD DIRECTOR
Elizabeth is mother to Louie and a committed supporter of the HUWE1 community. She has initiated, built and grown Louie’s Huwe, the first and only non-profit dedicated to supporting people with HUWE1-related genetic conditions. She has driven our first funded research project at Seattle Children's research institute and has been integral to all our fundraising including our inaugural Gala. Elizabeth lives with her family in Virginia, USA.
Kristin Whitford Baranano, M.D., Ph.D. is Assistant Professor in the Department of Neurology at Johns Hopkins University School of Medicine in Baltimore, USA. She is a pediatric neurologist and neurogeneticist who specializes in the diagnosis and management of rare neurologic disorders with a genetic basis.
Dr. Kristin Barañano, Ph.D.
Brock Grill, Ph.D. is a professor and principal investigator actively researching HUWE1. His work focuses on understanding how information is
relayed within nerve cells to regulate cellular activities and animal behavior. He has been studying HUWE1’s role in the nervous system for the past ten years. He is a professor at the University of Washington Medical School and at
the Seattle Children’s Research Institute, USA.
Prof. Brock Grill, Ph.D.
More about Louie's Huwe...
We support research to improve lives of people with HUWE1
Our research projects
Read our welcome information for newly diagnosed families
HUWE1 Welcome Guide
Fundraising drives everything we do