LOUIE'S HUWE INAUGURAL GALA: JANUARY 2024
Louie’s Huwe is excited to announce a fundraising Gala scheduled for 20 January 2024 at Potomac Point Winery, Virginia, USA. The goal of the Louie’s HUWE 1 in a Million Gala is to raise $250,000 to fund Seattle Children’s Hospital in their identification of a genetically targeted pharmaceutical designed to alleviate the symptoms of HUWE1-related disorders, primarily epilepsy.
About the event
Louie’s HUWE 1 in a Million Wine and Dine Me Gala will be held at Potomac Point Winery in Stafford, Virginia, on 20 January 2024. A wine tasting themed reception will start the festivities with wines offered by Potomac Point Winery and local brewmasters providing samples of the best local wine and beers in Virginia. The reception will also host a silent auction benefiting Louie’s HUWE.
During a formal sit down dinner created by Potomac Point Winery award-winning chefs, Impact Auctions will lead us through a wide selection of must-have prized items with all proceeds benefiting Louie’s HUWE and our HUWE1 families. After dinner, guests will enjoy an evening of live music and dancing!
As we build towards the event, Louie’s HUWE is currently seeking sponsorships - see details below. These children and their families desperately need a solution that can alleviate the more severe symptoms of this gene variation associated with epilepsy. Event sponsorship will be critical in helping in the research for alleviating the suffering of HUWE1 children.
YOUR SPONSORSHIP DIRECTLY BENEFITS PEOPLE LIVING WITH HUWE1-RELATED GENETIC CONDITIONS
People with HUWE1-related disorder are affected by mutations in the HUWE1 gene and have intellectual disability, epilepsy, and display autistic features as well as other medical issues.
Many children diagnosed with HUWE1 genetic variants experience intense, regular seizures, which can be one of the biggest challenges for families to manage. Others live life nonverbal, with significant intellectual disability or an autism diagnosis. One of the most dangerous features of this genetic disorder are the severe epileptic bouts individuals experience. Children and adults with HUWE1-related genetic conditions desperately need treatment options for severe epilepsy and other neurological symptoms. With your support, the Louie's HUWE 1 in a Million Gala aims to raise the funds to undertake essential genetic research to identify treatments to improve and save lives.
Meet the beautiful families we support by reading our family stories and watch our HUWE1 Community Video:
HUWE1 Community Video - music © 'This is Me' by The Greatest Showman Cast from the 'The Greatest Showman Soundtrack'.
Sponsorship is vital to the mission and success of our inaugural fundraiser. Today, we ask you to help us improve the lives of people affected by debilitating symptoms of HUWE1-related disorders by supporting the Louie’s HUWE Inaugural Gala. This event will inspire and uplift. There are sponsorship opportunities for every budget.
Available sponsorship packages are shown below or download our Louie's HUWE Gala Sponsorship Brochure.
WANT TO LEARN MORE?
Find out more about our nonprofit and the people we support...
Learn more about Louie's HUWE
Read about the HUWE1 families we support
Find out more about HUWE1-related disorders
Contact us to discuss your sponsorship or to show your support with a one-off donation, please make checks payable to 'Louie's Huwe' and send to Louie's Huwe, 508 Crabapple Drive, Stafford, VA 22554, United States.
Thank you for your support!